Monday, September 29, 2014

Lovely Day with Deb



Today I had to go the hospital to have an x ray done on my right hip as it has been bothering me once again. I also had to go to the cancer clinic for my routine blood work. I decided to ask my sister Debbie to take me. She arrived early this morning and we headed into Lasalle to have breakfast. LA grill is one of my favourite restaurants to have breakfast. My friend Greg and I usually meet their and in fact he got me and the girls hooked on it. I ordered my usual “Tony” which entails getting a Fred Flinstone size breakfast. 3 eggs over easy, hash browns, ham, bacon, sausage, pancakes, rye bread, fruit and coffee all for a whopping $9 and yes I do eat the whole thing. Although today I left a couple of the eggs on my plate along with sausage so that my sister did not think I was a piggly wiggly…. I enjoyed so much having breakfast with her as the conversation had very little to do with my illness. I liked that. Most conversations I have with people/family is about my leukemia or the wonderful ways it makes my physical appearance look so different.

 
Early this morning I got up with Pat to prepare his clothing for work; it was also a good chance for me to use my new steamer. I bought a clothing steamer at Walmart in preparation of me going into the hospital as I figured it would be much easier to teach Pat how to steam his clothing rather than try and haggle with an iron and ironing board. Yes I get his clothing ready every day, and yes I am preparing as many outfits for him as possible for during my absence. So this morning I turned my awesome new steamer on and waited for the steam to start, once I saw the steam I reached for the hose and in my tired state I grabbed the steamer end and felt my fingers stick to the head. I literally had to pull my fingers off. The blisters popped up instantly. What a great way to start off the day. Now I have to re-think the whole Pat steaming his clothes, because if I burnt myself I am pretty sure Pat will as well.grrr

 
I know I shouldn’t worry about his clothes but I see him when he visits me at the hospital after work and clearly he is colour blind and has no sense of coordinating his look. I once was told by one of his secretaries that they know when I am either away or in the hospital based on what he wears….so I fixed that. I threw away 2 garbage bags of his clothing and bought all new dress shirts and ties, solid coloured shirts that no matter what match any pants, any ties and voila, well put together Pat.  I just have to keep reminding him that brown belts equal brown shoes and black belts match black shoes……


Once Deb and I finished breakfast we headed to the cancer clinic to get my blood work done, I warned her that there was someone there that I always have to avoid because they bug me….so of course she made me obvious to this person that I was there and had to endure a 5 minute 16 hour conversation that I have had many times over. No problem Deb.Thanks. But don’t worry as we were leaving I heard her say oh %$# there is “name uttered” and I waited until the woman came closer and I yelled thank you Debbie for taking me, which then she had to endure a 10 hour conversation with someone who bugs her. When we got in the car we laughed so hard about it and how our bitchiness about others back fired. I guess you had to be there to witness the mission impossible moves we made to avoid the other person.

 
So the x ray of the right hip is to rule out a fracture, which of course I know it is not fractured. I think the oncologists think the cancer has gone to my bones and that is why I am also having a CT scan this week. Fingers crossed that it is fractured or just arthritis setting in. Who prays for a fracture, I mean seriously? Well someone like me who does not want to cancer anywhere else but where it is… After Deb dropped me off the nurse from my oncologist’s office called me to tell me that my potassium is once again high and that I need yet another drug to take to help bring it down. The pharmacy delivered what I thought would be a pill but instead it is a powder that you mix and drink. I should tell you that it is sand not powder, holy hell I could not even sip this crap…I am not sure how 3times a day I will do this when I can’t even handle a tablespoons worth of the mixture. Maybe I will try wine with it later, maybe it will dissolve better. (kidding) Last week my calcium was too high this week potassium, I sure wish I knew what was causing the imbalances. Hopefully the issue will resolve itself otherwise I can’t start my chemo. The nurse also informed me that my liver enzymes were off so I have a CT scan scheduled on Thursday for that as well. 


Once my CT scan is done I am being admitted for what will be my first round of 28 days of the arsenic chemo. I will need to be hospitalized for the full 28 days to be monitored. The side effects of this chemo are quite different from that of what I have already had. The issues I may face are heart related….but hey no big deal right? They tell me that with this regime I will be cancer free once I am done. Let’s just hope that it does not mean dead…..arsenic is rat poisoning……….starting to wonder if my husband is paying off the oncologists…………hmmmmmmmmmm.


Anyway enough blabbering on, 2 days left of freedom before they lock me back up. Going for breakfast again tomorrow with a dear friend and who knows what the rest of Tuesday will look like. Either way it will be good anything is better than the hospital.
Cheers 
~Christine~

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